OCRegister.com
SUBSCRIBE | IN TODAY'S PAPER | E-REGISTER | CUSTOMER SERVICE | SIGN-IN | HELP | ADVERTISE
Search:
Inside Autism ~ How we litigate, legislate, medicate and experience the autism age.

Farewell

November 25th, 2008, 5:35 pm by sammiller

And so we reach the end of this project. I’m moving on to cover a different beat, so Inside Autism will be going dormant. It should all be archived for a long time to come in case you want to read some of the greatest hits!

Thanks for all your interest and contributions, commenting, voting, being my sources and occasionally writing my posts. I’ll still be writing about autism, but not as often and not in the blog format. We’ll also continue to have autism-based discussions on our Web site at ocregister.com/ocmoms. In fact, you can start your own! It’s simpler than you’d think.

Denis Leary still sorry you misunderstood.

November 19th, 2008, 5:40 pm by sammiller

Denis Leary on The Daily Show last night: If I had said what they said I said, I’d be a really bad guy. But I didn’t say it. Well, I did. But it was taken out of context!

Video here.

Seriously, what he wrote is: I know a person with autism. If your kid really has autism, he would behave very similarly to Rainman. If he doesn’t, he doesn’t have autism, and you’re a bad parent.

I honestly can’t believe he’s getting away with this “apology.” The chapter is here (search for “Leary”) so you can read it for yourself.

Walk Now Video

November 19th, 2008, 1:26 pm by sammiller

Shot by a walker.

http://www.vimeo.com/2267052

Help for fire-affected autism families

November 18th, 2008, 8:31 am by sammiller

From TACA:

TACA Families: If you have lost your home or been evacuated (or know a family affected by autism that has) please contact us if you need a place to stay or any other help!

If your child is a regional center client, be sure to contact your caseworker for information about emergency housing and food allowances. Find your regional center.

How can you help?

Make a donation to help families that have been evacuated.
Contact our Family Scholarship Manager, Moira Giammatteo, as to how you can help.

Walk Now reactions

November 17th, 2008, 5:39 pm by sammiller

My story on Walk Now for Autism was partly about what participants say is a need for more awareness and sensitivity. I got a dissenting email from a Capistrano Unified teacher:

I read your article and was quite surprised at the perspective of the experiences described by some of the families.  I have been a teacher in Capistrano Unified School District for 19 years.  In my daily experiences with children with autism and other disabilities the students rarely define a student based on their disability.

Although many people say kids can be mean that is not what we find to be the general rule.  The students at our school embrace these students and treat them as equals. Yes they understand some things may be more difficult for them but they accept that in the same way they understand that some kids are good at math and some kids struggle with it.

It is clear that autism is a global problem that needs to be addressed.  But if parents want to see a model for acceptance they should walk into our school.   Not only do students with disabilities get many outside resources to support their needs they also receive the support and encouragement of their peers and teachers on a daily basis.

I also got this email, from a mom who walked:

I am a single mother of an 11-year old autistic son, and I can’t even get his father out there to show his support for his son. …

As the signs said out there today - Autism Speaks - It’s Time to Listen.

So thank you again for being there today and sharing so that others can be there next year, and the next year.

Photos from Walk Now for Autism

November 16th, 2008, 5:40 pm by sammiller

Eighty-nine One hundred and four of them, to be exact. Here they are.

Walk Now for Autism wrap-up

November 16th, 2008, 12:56 pm by sammiller

The first time Lainie Kyriakos tried to corral her friends and family members for an autism benefit walk, 10 showed up. On Sunday, the second time, there were 30.

“Next year,” she says, “it’ll probably be a 100.”

Team Christo — led by Lainie and named in honor of her son, who turns 3 next month and who has had an autism diagnosis for 18 months — were just specks in a crowd of 4,000 who turned out for the annual Walk Now for Autism, which raised a record $325,000 for the group Autism Speaks.

For Autism Speaks, a group concerned with autism awareness, the past few years have been bittersweet. Awareness is up, of course, but so too are the numbers of children diagnosed. As the autism community grows, so too do the challenges of raising money for research, passing legislation to protect families, and helping create a culture more sensitive to the challenges autistic children and their families face.

On Sunday, that community walked. They crowded around Angels Stadium, then marched into the stadium and around the playing field. They celebrated their children and cheered for each other.

“It’s important to bring out the community for one day when the kids can be together and not be looked down upon,” said Lauren Vitto, who co-chaired the event and whose younger brother, Zach, has autism.

Parents at the event say their children aren’t always welcomed so generously by strangers.     Read the rest of this entry »

ADVERTISEMENT