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Inside Autism ~ How we litigate, legislate, medicate and experience the autism age.

Archive for the 'Autism events' Category

Walk Now for Autism wrap-up

November 16th, 2008, 12:56 pm by Sam Miller, The Orange County Register

The first time Lainie Kyriakos tried to corral her friends and family members for an autism benefit walk, 10 showed up. On Sunday, the second time, there were 30.

“Next year,” she says, “it’ll probably be a 100.”

Team Christo — led by Lainie and named in honor of her son, who turns 3 next month and who has had an autism diagnosis for 18 months — were just specks in a crowd of 4,000 who turned out for the annual Walk Now for Autism, which raised a record $325,000 for the group Autism Speaks.

For Autism Speaks, a group concerned with autism awareness, the past few years have been bittersweet. Awareness is up, of course, but so too are the numbers of children diagnosed. As the autism community grows, so too do the challenges of raising money for research, passing legislation to protect families, and helping create a culture more sensitive to the challenges autistic children and their families face.

On Sunday, that community walked. They crowded around Angels Stadium, then marched into the stadium and around the playing field. They celebrated their children and cheered for each other.

“It’s important to bring out the community for one day when the kids can be together and not be looked down upon,” said Lauren Vitto, who co-chaired the event and whose younger brother, Zach, has autism.

Parents at the event say their children aren’t always welcomed so generously by strangers.     Read the rest of this entry »

Walk Now for Autism on Sunday

November 13th, 2008, 3:09 pm by Sam Miller, The Orange County Register

I’m just wrapping up a story about some of the people walking in this year’s Autism Speaks walk, which on Sunday is expected to raise about $500,000. I’ll be out there Sunday taking pictures, too, so say Hi.

All the details of the walk are after the jump: Read the rest of this entry »

Mid-morning mash: Autism walk, Denis Leary, assault

November 6th, 2008, 12:42 pm by Sam Miller, The Orange County Register

• Don’t forget, tonight is the screening of Autism: The Musical in Anaheim to raise money for the Walk Now for Autism.

• Autism United, which led the protests against Michael Savage this summer, has called off a planned protest of Denis Leary this month. “Autism United … called off the protest under the condition that Leary removes the remark or donates some of the proceeds to charity.” They also published the entire chapter on autism on Autism United’s Web site, so you can decide whether the comments were taken out of context, as Leary claims. Check it out.

• ABC News writes about the risks of sexual assault that autistic people face.

Making matters worse, sexual assault crimes are already underreported. The Rape, Abuse, and Incest National Network estimates that only 300 out of an estimated 1000 rapes that occur each day in the United States are actually documented. Hampered by poor communication and language skills, people on the autism spectrum may never be able to speak out about abuse, even if they are not held back by feelings of shame.

• And Barbara Fischkin writes what she would say if she had the new president’s ear:

As a mother whose son was diagnosed 18 years ago, I would tell him that while “hope” might be great for a nation, it’s a killer when you have a kid with autism. That’s the big picture of our lives. We are so willing to hope, particularly when our children are young, and then so devastated when the last sure thing turns out not to be a cure or even a route to one. But merely a big, fat, waste of time. Not to mention money.

Photos and more from Evening for Autism

November 3rd, 2008, 4:51 pm by Sam Miller, The Orange County Register

Here it is.

Lisa Ackerman confirms that she did end up winning the bidding war for Wheel of Fortune tickets. And Vanessa Showalter, who was doing press for the party, writes that three pieces of artwork by Ryan Saywitz (the 4-year-old who inspired the autism benefit) all sold, and now there is a waiting list for his future works.

All in all, about $200,000 raised.

Evening for Autism

November 3rd, 2008, 2:04 pm by Sam Miller, The Orange County Register

I’ll have a slideshow up soon, along with final figures from An Evening for Autism, the mega fundraiser at Barry Saywitz’ Newport Beach home Saturday. Here’s a small taste:

Hundreds of partygoers were dressed for a tropical party as the rain began falling Saturday night. Not to worry, the party’s host told them.

“We do have a rain contingency,” real-estate businessman Barry Saywitz told the crowd. “If it does rain, don’t do anything – just go to the bar and get another drink. It’s on me.”

Saywitz hosted more than 600 people for An Evening for Autism, a fund-raiser in his nearly 10,000-square-foot Newport Beach home. There were a half-dozen restaurants catering, hundreds of auction items, free shoe shining and massages and three live bands playing reggae and classic rock that echoed across several blocks.

Saywitz’ own son was diagnosed with autism two years ago, and Saywitz wanted to throw a party for the support groups and educators who have helped Ryan, now 4, overcome learning and communication struggles.

Turning serious, he told the crowd Saturday: “These children with autism are at home and they have trouble communicating, trouble learning, trouble in so many ways. But tonight they don’t have trouble with friends. You are now a friend to an autistic child.”

I’ll also be trying to track down whether TACA’s Lisa Ackerman was successful in her bid to buy Wheel of Fortune tickets in the silent auction. She was in a major bidding war. With her father.

Fundraiser goal: $250,000 for autism

October 30th, 2008, 8:28 am by Sam Miller, The Orange County Register

On Saturday, real estate businessman Barry Saywitz will raise a quarter-million dollars for autism. It’s an enormous effort, hosting at least 600 people at his Newport Beach home, twice as many as he’s ever had before. It takes multiple caterers, drink sponsors, corporate sponsors, three live bands, press coverage, red carpet entrance, etc.

So, of course, I ask how long he’s been planning it.

He laughs.

“Um, I bet it wasn’t 90 days. … The goal is to raise $250,000 or more in one evening in 90 days of planning. That’d be a helluva accomplishment.”

The idea was actually planted (but not acted on) about a year ago, when he had a much smaller, less organized party at his house to benefit autism organizations.

“I decided this year to make it a full-blown charity event,” the entrepreneur says. So three months ago he started making phone calls, always expecting tepid responses, always shocked at how eager people and companies were to be involved.      Read the rest of this entry »

Autism Calendar

October 17th, 2008, 1:59 pm by Sam Miller, The Orange County Register
  • Autism Speaks will be screening the Emmy-winning documentary “Autism: The Musical” as a fund-raiser for the upcoming Walk Now for Autism. The screening is at Cinema City Theaters in Anaheim, at 7 p.m. on Nov. 6. Tickets are $10. Info: janelle.lane@sbcglobal.net. Click here to see clips of the movie.
  • The local group Talk About Curing Autism, which is focused on treatment, advocacy and support, will be a beneficiary of Bloomingdale’s Shopping Benefit at three LA-area stores on Thursday. A $10 ticket gets you 15-20 percent off select items, along with access to fashion events and other entertainment.  The Century City location will also host a TACA-led class in gluten- and casein-free cooking. Tickets for that are $25. The Beverly Center and Sherman Oaks stores are also participating.
  • Autism Speaks will be a beneficiary of the same event at the Costa Mesa and Fashion Island Bloomingdale’s locations. Bring an Autism Speaks postcard with you and the group gets $5. To get a card, email Autism Speaks at vittodiane@yahoo.com.
  • Local entrepreneur Barry Saywitz and Tommy Bahama will be hosting “An Evening for Autism” on Nov. 1 to benefit TACA, Easter Seals Southern California and Autism Society of America. The fund-raising goal: $250,000.  The event is at Saywitz’ Newport Beach home and features three live bands, loads of catering, a red carpet entrance, five bars, a golf putting green, a live auction and more. Tickets are $150. More information here.
  • The Orange County Asperger’s group hosts a social support group for young women with Asperger’s Saturday, Oct. 25 from 1-2:30 p.m. Young women with Asperger’s or a related spectrum disorder over the age of 16 are invited to the free group, which meets monthly. It’s at University Park Library, 4512 Sandburg Way in Irvine. Information or to RSVP: sesgardner@cox.net, or call (949) 854-7415.

Got a calendar item? Email me at sammiller@ocregister.com to be included.